Researchers in Lothian giving voice to MND sufferers
MND Scotland has committed to having a research portfolio worth £2.4 million by 2020, with eight projects currently underway and a call for new research projects also live at the moment.
Much of this innovative research is taking place in Lothian at the University of Edinburgh.
Clinical Research, based at the Anne Rowling Regenerative Neurology Clinic, is delivering collaborative clinical projects including to see what learning can be found in research around diseases including MND.
The clinic carries out a range of research including projects such as Speak Unique Voicebank Research, where patients voices are recorded so that their voice machine will talk with their voice once they lose their own speech.
The Voice Bank initiative, using informatics to provide personalised synthetic voices for use in communication aids has already been a great success.
This Anne Rowling Clinic is an interdisciplinary clinic that also hosts linked and parallel activity in other serious neurological conditions.
Miles Briggs is a member of the Cross-Party Group in the Scottish Parliament on Rare, Genetic and Undiagnosed Conditions.
Scottish Conservative Health Spokesman Miles Briggs said:
“Lothian researchers are at the forefront of international research on MND and we should all be rightly proud that they are leading the way in this groundbreaking research.
“The innovative Voice Bank are still looking for key regional voices and I am pleased MSPs and Parliament staff have taken up the recent call for more voice donors to come forward.
“I again welcome today’s debate as part of MND Awareness Week and I wish all involved a successful week which raises even more money to support people with MND and their families and that we can continue to invest in the research that one day will lead to a cure for this devastating condition.”